We had to cancel the Mayo Clinic trip at the last minute because I was too unwell to travel, a result of side effects of the last round of infusions unfortunately. So it will be rescheduled for us later.
Improvement is continuing slowly. I know I have to keep from being too optimistic, but this feels like a real turning point after the constant decline over the past year and a half. Since starting the IVIG I’ve had a continuous slow gradual improvement (albeit with side effects). We are adjusting the IVIG to one infusion of 40g per week, and reducing the steroids to hopefully reduce the side effects I am having from them.