FAQ

What is the treatment for Kris’s condition?

Intravenous Immunoglobulin!  Learn more here:

IVIg for apparently autoimmune small-fiber polyneuropathy: first analysis of efficacy and safety. – PubMed – NCBI

https://www.ncbi.nlm.nih.gov/m/pubmed/29403541/

Autoimmunity may underlie newly discovered painful nerve-damage disorder

https://www.sciencedaily.com/releases/2017/11/171108155538.htm

Anne Louise Oaklander | Small Fibers, Big Pain || Radcliffe Institute

https://m.youtube.com/watch?v=s66LvWQ5Qso

Does Kris have a GoFundMe?

Yes, now we do
https://www.gofundme.com/kris039s-hospital-bill-and-mayo-clinic-visit

How can I help with this?

If we continue to be unable to get insurance to cover IVIG for Kris, we will need to continue to seek out treatment abroad.  You can email or phone hospitals in your home country or country in which you speak the native language with the following prompt.  (When writing, the neurology or immunology departments may be the most helpful.)

I’m writing on behalf of someone in the US who has been prescribed Immunotherapy (IVIG/Intravenous Immunoglobulin) by 4 doctors, but his insurance policy will not cover it. He has a condition called Auto-Immune Small Fiber Polyneuropathy. Do you offer IVIG at your facility? What is the cost of four 40 gram infusions into an 80kg male? Will you honor an American prescription?